Vowing to be a better blogger:)
Of course I had to ask myself why it had been almost a year since I posted last. And the answer was much easier than I thought. Makenna is 6. She is in first grade now. When I started this site, it was to keep family and friends informed. Then it very much became an outlet for me; to share my frustrations, fears, hopes and good news. I still need that outlet, but I think the general premise may change a little. The story of Makenna's journey is just that - it is HER story. As she gets older, it feels a little like I am posting on her behalf. I mean, this is the INTERNET. What I write today will still be here when she is asked to google her name in class someday. Fear not...it won't be long before she's able to write her own blog:)
That being said, I think there is still something important that needs to come from our experience - something that still needs to be shared. But it's from a parent perspective. So while I will still give updates after each appointment (every six months now), I will do a better job of keeping up with the site from a personal perspective. Navigating the medical system, being an advocate for your child - finding them the help they need when it seems you keep running into roadblocks, building yourself a community of support, and handling all the emotions that come along with any diagnosis that throws a curveball in your "plan". Those are things I can speak to. Things that reflect my experience, not hers.