Things are moving along quickly. It's hard for me to believe that we only have 3 weeks left in cast. It's been 401 days since the initial x-ray that confirmed the scoliosis. I cannot fully get my mind around what all has transpired in the last year. It is truly amazing...
And I feel like I have grown (and aged!) 10 years in that time.
Things are good. Things are happening. Things are hopeful. I feel encouraged.
I have a great support system in the other families being treated at Chicago Shriners. My Chicago Sisters form a strong, tight band of women. We all share a passion for our children and have found a voice as their advocates. And this is how it works for us...
My friend Catie wrote a blog this morning with the intention of covering cast day #5 for her son William. It turned into a WISH to do list. From there the idea and thought of fundraising turned into developing a non-profit foundation in our kids names to provide for families in the future. Funds wold be raised for things to make casting easier for families and kids; including dvd players in the pre-op room (the worst part, by the way!!!), cast friendly car seats for families that need them (the cast is pretty bulky), shutterfly albums featuring casted kids for families new to casting - it's soooo scary to think your child will be incapacitated!!! There are lots of things we can do to help famliies who are just starting the journey we have been on. The possibilities are endless. There is so much I want to share with families who are starting this journey and so many differenet way in which we can all help. I am excited to be a part of that.
These women, these famliies - inspire me to be a better person. To look beyond my anger and frustration and see the silver lining. To see how my child's suffering can help someone else. Today I will be the bigger person. I will make a difference.
For the record, I am looking into transferring to a new blog. That way, those of you who do not want access to my meniacal blog entries will not have to suffer :) This site will remain open for updates on Makenna - which is what it was intended for and will continue to serve. Once we switch to a brace, I am not sure how much of an update we will have , or how often. I will post them here, but feel I have so much more to say... so I will find someplace to say it.
If you'd like that link, let me know. Otherwise, you'll have to find it on your own :) or follow it on FB!