One Child's Story with Horizontal Gaze Palsy with Progressive Scoliosis
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Emerging 3 Year Old!!!

3/2/2010

1 Comment

 
Makenna's third birthday is quickly approaching. And as she shows her true 3 year old colors with lots of "No's" and plenty of "why's", I am still amazed by her ability to adapt to her circumstances and am overwhelmingly sad that I cannot give her the one thing I would love to for her birthday. I want to be able to fix this, and just make it go away. I want her to be able to take a bath when she wants to, to play in the water, to roll over on the floor without struggling, to curl up in bed, and to not have this scoliosis looming over her head. She amazes me because none of this bothers her. She stopped asking for a bath, she has adapted to her limitations in mobility, she sleeps fine at night, and she has no idea that what she is going through is abnormal.
So I continue to give thanks for Makenna's wonderful disposition, despite the emerging three year old behavior!
This new cast is incredible tight. Not that it's showing any signs of skin breakdown or anything like that, but I cannot imagine it lasting another 9 weeks. I have spoken with her Dr and am on the lookout for certain signs that the cast is too tight, but so far we are good. It is very snug and has a great 'shape' to it! She has a waist again :) I've spoken to a few other cast parents who have had a cast like this... with the figure... and they said it was the cast they got the most correction in. So, keep your fingers crossed on that one!!!
1 Comment
Jo Bull
3/10/2011 05:06:40 pm

When they put a plaster cast on my daughter they plastered right down one of her legs because they didnt want her sitting with her legs to one side like a mermaid because that was making her curve worse so just watch her posture when she is out of the cast my daughter Tedie is now 16

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