I have neglected this blog for long enough:) Dave brought it to my attention the other day when he said he checked the sight and saw the kids in their First Day Shirts for school....LAST YEAR!!!
Vowing to be a better blogger:)
Of course I had to ask myself why it had been almost a year since I posted last. And the answer was much easier than I thought. Makenna is 6. She is in first grade now. When I started this site, it was to keep family and friends informed. Then it very much became an outlet for me; to share my frustrations, fears, hopes and good news. I still need that outlet, but I think the general premise may change a little. The story of Makenna's journey is just that - it is HER story. As she gets older, it feels a little like I am posting on her behalf. I mean, this is the INTERNET. What I write today will still be here when she is asked to google her name in class someday. Fear not...it won't be long before she's able to write her own blog:)
That being said, I think there is still something important that needs to come from our experience - something that still needs to be shared. But it's from a parent perspective. So while I will still give updates after each appointment (every six months now), I will do a better job of keeping up with the site from a personal perspective. Navigating the medical system, being an advocate for your child - finding them the help they need when it seems you keep running into roadblocks, building yourself a community of support, and handling all the emotions that come along with any diagnosis that throws a curveball in your "plan". Those are things I can speak to. Things that reflect my experience, not hers.
Vowing to be a better blogger:)
Of course I had to ask myself why it had been almost a year since I posted last. And the answer was much easier than I thought. Makenna is 6. She is in first grade now. When I started this site, it was to keep family and friends informed. Then it very much became an outlet for me; to share my frustrations, fears, hopes and good news. I still need that outlet, but I think the general premise may change a little. The story of Makenna's journey is just that - it is HER story. As she gets older, it feels a little like I am posting on her behalf. I mean, this is the INTERNET. What I write today will still be here when she is asked to google her name in class someday. Fear not...it won't be long before she's able to write her own blog:)
That being said, I think there is still something important that needs to come from our experience - something that still needs to be shared. But it's from a parent perspective. So while I will still give updates after each appointment (every six months now), I will do a better job of keeping up with the site from a personal perspective. Navigating the medical system, being an advocate for your child - finding them the help they need when it seems you keep running into roadblocks, building yourself a community of support, and handling all the emotions that come along with any diagnosis that throws a curveball in your "plan". Those are things I can speak to. Things that reflect my experience, not hers.